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  #1  
Old 01-16-2008, 08:37 PM
CounterfeitVoid CounterfeitVoid is offline
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Inflammatory Bowel Diseases

I've recently been diagnosed with ulcerative colitis after many months of hemorraghing (had to get four blood transfusions!) and am now on sterroids for the next month and have to take sulfasalazine for the rest of my life to prevent flare-ups.

Does anybody have or know somebody with an inflammatory bowel disease? Cause I don't know anyone...

Oh, and if I get facial hair from the steroids, I'm giving myself a hitler moustache
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  #2  
Old 01-16-2008, 10:22 PM
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My friend Laura has ulcerative colitis and though she does have to pop pills, since it initially caused her problems and was disagnosed she has had a pretty good run with her health. About seven years now. And we got over singing "the girl with colitis goes by...", eventually.
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  #3  
Old 01-16-2008, 10:28 PM
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Had similar problems a few years ago, after a year siege with weight loss/other awful problems too gross to go into here.
After a job change and course of medication, I haven't really had problems since 2002. At the time of my illness I had lost 30 pounds and was under the worst job stress of my life, I think that was really what did it. NOTE: I really didn't need to lose 30 pounds, I looked like death's head.
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Old 01-16-2008, 11:03 PM
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Originally Posted by emily34695 View Post
Had similar problems a few years ago, after a year siege with weight loss/other awful problems too gross to go into here.
After a job change and course of medication, I haven't really had problems since 2002. At the time of my illness I had lost 30 pounds and was under the worst job stress of my life, I think that was really what did it. NOTE: I really didn't need to lose 30 pounds, I looked like death's head.
Are you on medication indefinitely? My friend is.
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actualy [sic] I have quite a blessed life if I'm honest. I have many people to love, hate few and have few money problem's [sic].... What more does a person need? Oh yeah and I have some kind of humbleness unlike you of course ^_^ ~ CarefulCarpenter
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  #5  
Old 01-16-2008, 11:13 PM
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Originally Posted by bort View Post
Are you on medication indefinitely? My friend is.
Not right now. To make a long story short, during 2001 I became really sick, I was under a doctor's care and at first they thought it was Crohns' (sp?) Disease (a few people in my family had it) or perhaps celiac disease. I literally couldn't eat. Other stuff happened as well, like bleeding, etc. I was hospitalized for that once and it was pretty scary...
After a load of tests they couldn't find anything definitive, so I was diagnosed with severe IBS (sort of a catch all, I guess?). I was on medication for a while; I was also transferred to a different job at the time, which helped immensely. In my opinion I think stress was killing me.

Sorry to hijack your thread, CounterfeitVoid! At any rate try to destress yourself, I think that contributed to my intestinal agony the most...
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  #6  
Old 01-16-2008, 11:14 PM
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Originally Posted by emily34695 View Post
Had similar problems a few years ago, after a year siege with weight loss/other awful problems too gross to go into here.
Nothing is too gross for this place. Details please
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  #7  
Old 01-16-2008, 11:28 PM
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Nothing is too gross for this place. Details please
I should probably second this.
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  #8  
Old 01-16-2008, 11:31 PM
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I've heard of people having surgery for hemarhoids, and colostamie bags and polyps on their colon and colon cancer- but not what the thread is about. Sounds bad.
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  #9  
Old 01-16-2008, 11:32 PM
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And I've heard of a spastic colon.
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  #10  
Old 01-16-2008, 11:52 PM
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What's the maximum number of polyps one can have embedded on their colon before it becomes a problem? Can you please provide a pic of a polyp or I may need to doubt your sincerity.
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  #11  
Old 01-17-2008, 12:27 AM
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I have a weird hybrid of IBS/IBD/Crohn's that nobody can fully figure out (and i felt like i had shitty doctors, so i just stopped going). after two sigmoidoscopies, a colonoscopy, multiple ass exams, barium enemas/barium swallows, xrays, blood tests, etc.

I can understand your situation. for me the frustrating part is having to explain it to other people. like "oh no professor, i wasn't in class because i was sick", to which they always ask "with what? the flu", and then i have to say (in some pleasant non-disgusting, tmi sortof way) that i have internal bleeding caused from ulcerations, chronic constipation, and that when i have an assbleed, i generally want to stay home. OR i just say "crohn's disease", which i'm always afraid they'll lookup on google, and then find out about all the gory diarreah it describes (which i DONT have) and then i feel like they stare at me the rest of the quarter with "omgshehasdiarreahdisease" eyes.

i think stress is a BIG factor in controlling "flares" (a super pathetic term i can't convince myself to say aloud).

good luck, lady.
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  #12  
Old 01-17-2008, 12:39 AM
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I can understand your situation. for me the frustrating part is having to explain it to other people. like "oh no professor, i wasn't in class because i was sick", to which they always ask "with what? the flu", and then i have to say (in some pleasant non-disgusting, tmi sortof way) that i have internal bleeding caused from ulcerations, chronic constipation, and that when i have an assbleed, i generally want to stay home. OR i just say "crohn's disease", which i'm always afraid they'll lookup on google, and then find out about all the gory diarreah it describes (which i DONT have) and then i feel like they stare at me the rest of the quarter with "omgshehasdiarreahdisease" eyes.
What university is this? the professors at my uni couldn't give a shit if anyone turned up or not, and if they did ask I would've advised them to mind their own business or made up a story about a disease that sounded way cooler to have.
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Old 01-17-2008, 02:45 AM
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well, i'm a in my last year in uni, and the higher up you go, the smaller the classes get (ie: 100 people might be in an 'intro to ancient history class', but less than 20 in a 'senior seminar: perspectives of the american progressive era' class that only american history majors need to graduate). and one of my classes is a thesis practicum with 3 people in it, so. they know.
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Old 01-17-2008, 03:52 PM
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Nothing is too gross for this place. Details please
Oh jesus, you guys need to PM me for the grossness. It is pretty bad, seriously.
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Old 01-17-2008, 07:00 PM
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PM me with grossness details! I can put up with anything. One of my friends had anal prolapse once (a female, not a bottom gay) and told me all about it.
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Old 01-17-2008, 07:57 PM
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Have a look at this site Irritable Bowel Syndrome ~ Help For IBS Treatments & Education I think it's really interesting on latest research on ibs, etc, etc.
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Old 01-17-2008, 10:43 PM
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Quote:
Originally Posted by CounterfeitVoid View Post
I've recently been diagnosed with ulcerative colitis after many months of hemorraghing (had to get four blood transfusions!) and am now on sterroids for the next month and have to take sulfasalazine for the rest of my life to prevent flare-ups.

Does anybody have or know somebody with an inflammatory bowel disease? Cause I don't know anyone...

Oh, and if I get facial hair from the steroids, I'm giving myself a hitler moustache

My stepmother has that. She was in the hospital for a week at the very beginning, when she was first diagnosed. She did the steroids and all that and she's doing really well now. I mean, she's a total drunk and she's right back to the bottle, no hairy face, she's still skinny. The whole nine yards.
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Old 01-18-2008, 09:12 AM
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I never had to take any steroids. What worked for me is taking care of my diet (you have to discover what is good and what is bad for your bowel), controlling stress, and also going to a clinic to have my bowel cleaned with water - i don't know the English name for that.
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Old 01-18-2008, 09:18 AM
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and also going to a clinic to have my bowel cleaned with water - i don't know the English name for that.
You should get yourself one of those Japanese toilets that clean your arse by squirting water, to save the doctor from sticking a hose up you.
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Old 01-18-2008, 06:12 PM
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Yes, in fact I already got one of those
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