How many people here have it? What do you take for it, if anything? How have you been treated for it? So far I have been just fobbed off and told that every woman has it to some degree and I shouldn't be too worried until I start trying for a baby and I might have some problems then.

I've looked around on some websites though and it seems like there are medications to at least deal with the symptoms. It was suggested I go on the pill but because my mothers family has a history of thrombosis, blood clots and stroke they won't put me on it.

It really gets me down and I think maybe I should ask to be refferred to an endocronoligist/gyno but I'm living in Scotland now and you have NHS and I'm not sure how it all works if I can just ask them to do that or what will happen? I've already had to try to convince them that this is what I have from years of symptoms and researching and finally a bloodtest was taken over here and they told me this is what I have but it's not a big deal.....To me it is though, I feel like it's wrecking my life and I'll maybe never have children or I might have multiple miscarriages and while I'm not planning children right now -that is scary to think of in the future.

i have it.
i'm worried about the having kids thing too.
i'm not on anything for it, i tried the pill but i can't take it because it makes everything worse for me for some reason.

I have a few friends who have it, two are on the pill for it and one just grins and bears it without. On the NHS you could definitely ask the GP for a referral, especially since you can't use the pill. Just make a GP appointment, say the symptoms are affecting your life and that you'd like to see either an endocronologist or a gynaecologist and they will refer you!

You should definitely be referred to a endocronologist and/or a gyno. I was finally offcially diagnosed yesterday after having symptoms for nearly two years, my sister has it so I knew what to look out for. After my blood test results the GP referred me an endocronologist straight away and they have been very helpful. I'll be on progesterone to kick start my periods again for a few weeks then starting two other medications to help with the symptoms. Demand to be referred.

As for the having kids issue; my sister was told it was unlikely she'd be able to conceive because her ovaries were in such bad shape from the pcos. She got pregnant within a few weeks of the diagnosis and had a perfectly healthy baby girl.

__________________
Everything good, I deem too good to be true
Everything else is just a bore
Everything I have to look forward to
Has a pretty painful and very imposing before

That gives me hope because I really desperately want to have children one day when I'm settled and I'm just worried my ovaries are going to get worse and worse and eventually it will be impossible.
I'm going to ask to be referred but I just don't find the doctors here very helpful or approachable for some reason. Desiderata is it a UK GP that referred you or US? It seems like in the US people are more readily referred to gynos and other specialists whereas in the UK the GP deals with everything. It doesn't seem like many doctors have much understanding or empathy when it comes to this condition though.